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How do everyday citizens view human genome editing and its regulation when given the chance to learn about it?

The problem:

Human genome editing alters genetic sequences to enhance traits or remove risks. While the technology holds great promise, it also raises complex ethical and social questions. Public perspectives are vital but remain underexplored due to limited debate on this issue.

Our research:

• We designed and conducted Australia’s first Citizens’ Jury on genome editing, giving everyday citizens the chance to learn about the technology and consider regulatory options.
• The jury brought together a diverse cross-section of the public in July 2021 at Old Parliament House, where participants engaged with experts, deliberated, and developed recommendations for decision-makers.
• This research, funded by the Australian Research Council, explored how public opinions are shaped through informed discussion and collective reasoning.

Our impact:

• Our research connected genomic science, the public, and government, providing decision-makers with valuable insights into how citizens view genome editing and its regulation.
• The citizen jurors’ report was well received by key agencies, including the Office of the Gene Technology Regulator and the National Health and Medical Research Council. It conveyed cautious enthusiasm but stressed equity and ethical concerns.

The research brought together genomic science, the public and government, helping to convey important insights into public thinking to decision makers.